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Lennox-Gastaut Syndrome

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Lennox-Gastaut Syndrome

Increasing Awareness of Rare Diseases Is Often More Personal than Business

By On February 29, 2016

Today is Rare Disease Day, a day meant to raise awareness about rare diseases and how such diseases affect patients’ lives. The worldwide event launched in 2008, and last year more than… Read More

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Clinical Trials

To Raise Awareness We Need to Level the Playing Field

By On October 29, 2015

Lennox-Gastaut syndrome (LGS) is extremely rare. It effects somewhere between 1 and 4 percent of cases of pediatric epilepsy. Although epilepsy is fairly well known, few people have ever heard of LSG.… Read More

Epilepsy
Lennox-Gastaut Syndrome

More Research, Awareness Needed for Rare Form of Epilepsy

By On March 24, 2014

This past Saturday, thousands of people gathered in Washington, D.C., to walk with the goal of making a difference in the lives of those who have epilepsy. The National Walk for Epilepsy—an… Read More